Survival from Childhood Cancer Registry

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The dataset presents the percentage survival rates at five years after diagnosis for children in the National Registry of Childhood Tumours (NRCT) who were diagnosed in the five-year periods 1971-75, 1976-80, 1981-85, 1986-1990, 1991-1995, 1996-2000 and 2001-05. Data are given for most of the main groups in the International Classification of Childhood Cancer, Third Edition, and for the most important individual subtypes of childhood cancer.

Complexity

Completeness of registration has improved during the period covered by these data, for two main reasons. The level of completeness in the general (all-ages) regional and national cancer registries that cover the whole of the UK, and which all contribute to the National Registry of Childhood Tumours (NRCT), has increased over time. The UKCCSG (UK Children’s Cancer Study Group, now Children’s Cancer and Leukaemia Group, CCLG) has been an increasingly important source of data since it was founded in 1977, and nowadays more than 90% of children with cancer are notified to the NRCT from pediatric oncology centers affiliated to the CCLG (Children’s Cancer and Leukaemia Group). The overall level of completeness of NRCT registration is thought to have been around 95% for children diagnosed with cancer in the early 1980s, and is probably near 100% for recent years.

The proportion of all cancers developing in childhood that are actually diagnosed before the fifteenth birthday (the upper end of the age range covered by the NRCT) has probably also increased over time. Since 1970 there have been major advances in diagnostic methods for cancer, including imaging by ultrasound, CT (Computed Tomography) scan and an MRI (Magnetic Resonance Imaging). These methods have made it possible to recognize cancer at a less advanced stage of disease: perhaps as much as several years earlier for some very slow-growing brain tumors, for example. So the recent data probably include some children who previously would not have been diagnosed until after the fifteenth birthday, or even at all (if the child died and the death was attributed to non-cancer causes, or if the cancer regressed spontaneously without ever causing symptoms). The numbers of registrations contributing to these data are often slightly smaller than those in the tables of Childhood Cancer Registrations because they exclude children with no follow-up information.

Accuracy of diagnosis has also improved over time. Since 1970 specific tests have been developed for many types of childhood cancer. Some children in certain diagnostic groups in the earlier years would probably have been allocated to a different group if they had been diagnosed more recently.

Date Created

1971

Last Modified

2005

Version

2005

Update Frequency

Triennial

Temporal Coverage

1971 - 2005

Spatial Coverage

Great Britain

Source

John Snow Labs; Childhood Cancer Research Group (housing the National Registry of Childhood Tumors);

Source License URL

Source License Requirements

N/A

Source Citation

N/A

Keywords

Health Outcomes, Patient Outcomes, Cancer Registry, Childhood Cancer, Disease Registry, Cancer Statistics, Cancer in Children, Cancer Registry

Other Titles

Childhood Cancer Statistics, Childhood Cancer Survival

NameDescriptionTypeConstraints
International_Classification_of_Childhood_Cancer_Group_CodeInternational Classification of Childhood Cancer Group Numberstring-
Total_Registered_CasesTotal Number of Registered Casesintegerlevel : Ratio
Description_of_Childhood_Cancer_Group_CodeICCC Code descriptionstring-
Cases_Reported_Between_1971_and_1975Number of Cases Reported between 1971 and 1975integerlevel : Ratio
Cases_Reported_Between_1976_and_1980Number of Cases Reported between 1976 and 1980integerrequired : 1 level : Ratio
Cases_Reported_Between_1981_and_1985Number of Cases Reported between 1981 and 1985integerrequired : 1 level : Ratio
Cases_Reported_Between_1986_and_1990Number of Cases Reported between 1986 and 1990integerrequired : 1 level : Ratio
Cases_Reported_Between_1991_and_1995Number of Cases Reported between 1991 and 1995integerrequired : 1 level : Ratio
Cases_Reported_Between_1996_and_2000Number of Cases Reported between 1996 and 2000integerrequired : 1 level : Ratio
Cases_Reported_Between_2001_and_2005Number of Cases Reported between 2001 and 2005integerrequired : 1 level : Ratio
International_Classification_of_Childhood_Cancer_Group_CodeTotal_Registered_CasesDescription_of_Childhood_Cancer_Group_CodeCases_Reported_Between_1971_and_1975Cases_Reported_Between_1976_and_1980Cases_Reported_Between_1981_and_1985Cases_Reported_Between_1986_and_1990Cases_Reported_Between_1991_and_1995Cases_Reported_Between_1996_and_2000Cases_Reported_Between_2001_and_2005
204938Lymphoma47597480858688
48495All cancers40506166737678
1015850Leukaemia33456167757983
1015850Leukaemia33456167757983
1015850Leukaemia33456167757983
1015850Leukaemia33456167757983
1015850Leukaemia33456167757983
1015850Leukaemia33456167757983
1015850Leukaemia33456167757983
1015850Leukaemia33456167757983