Others titles
- Childhood Cancer Statistics
- Childhood Cancer Survival
Keywords
- Health Outcomes
- Patient Outcomes
- Cancer Registry
- Childhood Cancer
- Disease Registry
- Cancer Statistics
- Cancer in Children
- Cancer Registry
Survival from Childhood Cancer Registry
The dataset presents the percentage survival rates at five years after diagnosis for children in the National Registry of Childhood Tumours (NRCT) who were diagnosed in the five-year periods 1971-75, 1976-80, 1981-85, 1986-1990, 1991-1995, 1996-2000 and 2001-05. Data are given for most of the main groups in the International Classification of Childhood Cancer, Third Edition, and for the most important individual subtypes of childhood cancer.
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Description
Completeness of registration has improved during the period covered by these data, for two main reasons. The level of completeness in the general (all-ages) regional and national cancer registries that cover the whole of the UK, and which all contribute to the National Registry of Childhood Tumours (NRCT), has increased over time. The UKCCSG (UK Children’s Cancer Study Group, now Children’s Cancer and Leukaemia Group, CCLG) has been an increasingly important source of data since it was founded in 1977, and nowadays more than 90% of children with cancer are notified to the NRCT from pediatric oncology centers affiliated to the CCLG (Children’s Cancer and Leukaemia Group). The overall level of completeness of NRCT registration is thought to have been around 95% for children diagnosed with cancer in the early 1980s, and is probably near 100% for recent years.
The proportion of all cancers developing in childhood that are actually diagnosed before the fifteenth birthday (the upper end of the age range covered by the NRCT) has probably also increased over time. Since 1970 there have been major advances in diagnostic methods for cancer, including imaging by ultrasound, CT (Computed Tomography) scan and an MRI (Magnetic Resonance Imaging). These methods have made it possible to recognize cancer at a less advanced stage of disease: perhaps as much as several years earlier for some very slow-growing brain tumors, for example. So the recent data probably include some children who previously would not have been diagnosed until after the fifteenth birthday, or even at all (if the child died and the death was attributed to non-cancer causes, or if the cancer regressed spontaneously without ever causing symptoms). The numbers of registrations contributing to these data are often slightly smaller than those in the tables of Childhood Cancer Registrations because they exclude children with no follow-up information.
Accuracy of diagnosis has also improved over time. Since 1970 specific tests have been developed for many types of childhood cancer. Some children in certain diagnostic groups in the earlier years would probably have been allocated to a different group if they had been diagnosed more recently.
About this Dataset
Data Info
Date Created | 1971 |
---|---|
Last Modified | 2005 |
Version | 2005 |
Update Frequency |
Triennial |
Temporal Coverage |
1971 - 2005 |
Spatial Coverage |
Great Britain |
Source | John Snow Labs; Childhood Cancer Research Group (housing the National Registry of Childhood Tumors); |
Source License URL | |
Source License Requirements |
N/A |
Source Citation |
N/A |
Keywords | Health Outcomes, Patient Outcomes, Cancer Registry, Childhood Cancer, Disease Registry, Cancer Statistics, Cancer in Children, Cancer Registry |
Other Titles | Childhood Cancer Statistics, Childhood Cancer Survival |
Data Fields
Name | Description | Type | Constraints |
---|---|---|---|
International_Classification_of_Childhood_Cancer_Group_Code | International Classification of Childhood Cancer Group Number | string | - |
Total_Registered_Cases | Total Number of Registered Cases | integer | level : Ratio |
Description_of_Childhood_Cancer_Group_Code | ICCC Code description | string | - |
Cases_Reported_Between_1971_and_1975 | Number of Cases Reported between 1971 and 1975 | integer | level : Ratio |
Cases_Reported_Between_1976_and_1980 | Number of Cases Reported between 1976 and 1980 | integer | level : Ratiorequired : 1 |
Cases_Reported_Between_1981_and_1985 | Number of Cases Reported between 1981 and 1985 | integer | level : Ratiorequired : 1 |
Cases_Reported_Between_1986_and_1990 | Number of Cases Reported between 1986 and 1990 | integer | level : Ratiorequired : 1 |
Cases_Reported_Between_1991_and_1995 | Number of Cases Reported between 1991 and 1995 | integer | level : Ratiorequired : 1 |
Cases_Reported_Between_1996_and_2000 | Number of Cases Reported between 1996 and 2000 | integer | level : Ratiorequired : 1 |
Cases_Reported_Between_2001_and_2005 | Number of Cases Reported between 2001 and 2005 | integer | level : Ratiorequired : 1 |
Data Preview
International Classification of Childhood Cancer Group Code | Total Registered Cases | Description of Childhood Cancer Group Code | Cases Reported Between 1971 and 1975 | Cases Reported Between 1976 and 1980 | Cases Reported Between 1981 and 1985 | Cases Reported Between 1986 and 1990 | Cases Reported Between 1991 and 1995 | Cases Reported Between 1996 and 2000 | Cases Reported Between 2001 and 2005 |
48495 | All cancers | 40 | 50 | 61 | 66 | 73 | 76 | 78 | |
10 | 15850 | Leukaemia | 33 | 45 | 61 | 67 | 75 | 79 | 83 |
11 | 12442 | Lymphoid leukaemia | 41 | 53 | 69 | 74 | 81 | 83 | 88 |
12 | 2465 | Acute myeloid leukaemia | 6 | 14 | 26 | 44 | 51 | 65 | 64 |
20 | 4938 | Lymphoma | 47 | 59 | 74 | 80 | 85 | 86 | 88 |
21 | 2089 | Hodgkin lymphoma | 80 | 87 | 90 | 91 | 97 | 94 | 95 |
22,23 | 2664 | Non-Hodgkin lymphoma | 24 | 41 | 65 | 74 | 77 | 81 | 83 |
30 | 11562 | CNS tumours | 41 | 47 | 54 | 57 | 67 | 71 | 71 |
31 | 1218 | Ependymoma & choroid plexus tumours | 36 | 29 | 49 | 45 | 66 | 64 | 67 |
32 | 4662 | Astrocytoma | 57 | 63 | 69 | 70 | 76 | 81 | 81 |