Childhood Cancer Registry

$179 / year

The number of registered cases of childhood cancer in the National Registry of Childhood Tumours (NRCT) is currently available for the five-year periods 1971-75, 1976-80, 1981-85, 1986-1990, 1991-1995, 1996-2000 and 2001-2005, and the two-year period 2006-2007. Within each period the number of cases is given for each of the major groups in the International Classification of Childhood Cancer, Third Edition, by sex and age group at diagnosis. The age groups are 0-4, 5-9 and 10-14 years.


Completeness of registration has improved during the period covered by these data, for two main reasons. The level of completeness in the general (all-ages) regional and national cancer registries that cover the whole of the UK, and which all contribute to the National Registry of Childhood Tumours (NRCT), has increased over time. The UKCCSG (UK Children’s Cancer Study Group, now Children’s Cancer and Leukaemia Group, CCLG) has been an increasingly important source of data since it was founded in 1977, and nowadays more than 90% of children with cancer are notified to the NRCT from pediatric oncology centers affiliated to the CCLG. The overall level of completeness of NRCT registration is thought to have been around 95% for children diagnosed with cancer in the early 1980s, and is probably near 100% for recent years.

The proportion of all cancers developing in childhood that are actually diagnosed before the fifteenth birthday (the upper end of the age range covered by the NRCT) has probably also increased over time. Since 1970 there have been major advances in diagnostic methods for cancer, including imaging by ultrasound, CT and MRI. These methods have made it possible to recognize cancer at a less advanced stage of disease: perhaps as much as several years earlier for some very slow-growing brain tumors, for example. So the recent data probably include some children who previously would not have been diagnosed until after the fifteenth birthday, or even at all (if the child died and the death was attributed to non-cancer causes, or if the cancer regressed spontaneously without ever causing symptoms).

Accuracy of diagnosis has also improved over time. Since 1970 specific tests have been developed for many types of childhood cancer. Some children in certain diagnostic groups in the earlier years would probably have been allocated to a different group if they had been diagnosed more recently.

Date Created


Last Modified




Update Frequency


Temporal Coverage

1971 - 2008

Spatial Coverage

Great Britain


John Snow Labs; Childhood Cancer Research Group (housing the National Registry of Childhood Tumors);

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Source License Requirements


Source Citation



Cancer, Childhood Cancer, Disease Registry, Classification of Childhood Cancer, Children's Cancer, Cancer Diagnosis, Cancer Registry

Other Titles

Cancer Registry, Childhood Cancer Statistics, Childhood Cancer Statistics

Data_Collection_YearsFive Year period in which the data was collectedstringrequired : 1
International_Classification_of_Childhood_Cancer_Group_NumberGroup Number for International Classification of Childhood Cancerintegerrequired : 1 level : Nominal
International_Classification_of_Childhood_Cancer_Group_TextDescription of International Classification of Childhood Cancer Group Numberstringrequired : 1
GenderGender of the casestring-
Number_of_Cases_Between_Age_0_to_4Number of cases between the age Group 0 to 4 yearsintegerlevel : Ratio
Number_of_Cases_Between_Age_5_to_9Number of cases between the age Group 5 to 9 yearsintegerlevel : Ratio
Number_of_Cases_Between_Age_10_to_14Number of cases between the age Group 10 to 14 yearsintegerlevel : Ratio
Total_CasesTotal number of casesintegerrequired : 1 level : Nominal
2006 to 200850RetinoblastomaMale64266
1981 to 198550RetinoblastomaMale86389
2001 to 200550RetinoblastomaMale933399
1996 to 200050RetinoblastomaMale915197
1986 to 199050RetinoblastomaMale998107
1976 to 198050RetinoblastomaMale754180
2006 to 200850RetinoblastomaFemale65267
2006 to 200860Renal tumoursMale83239115
2006 to 200870Hepatic tumoursMale222226
2001 to 200570Hepatic tumoursMale446353